Workshop WO03

Japan Dementia Working Group

Live well, with dementia: Proposals and actions by people living with dementia – from overseas to Japan, and Japan to overseas

Time

Location 

14:00–15:30

Room D (first floor)

Chair

Mr. Tomofumi Tanno (JDWG Member)

Speaker

Kazuko Fujita, JDWG Co-Founder
Masahiko Sato, JDWG Co-Founder
Koichi Oku, JDWG Member
Miki Taira, JDWG Member
Tomofumi Tanno, JDWG Member
Yutaka Takeuchi, JDWG Member
Tetsuro Ishihara, JDWG Partner

Description

To “Live well, with dementia” is a big hope for those who have dementia as well as those who have not. People with dementia find hope by meeting other people with dementia. We share our experiences, feelings, and thoughts. Our friends in the community find hope when they start to walk along with us. In this workshop, people with dementia and their supporters will talk about the real hope that spreads by locating people with dementia at the centre. Each presentation will be based on our different perspectives and positions, report on aspirational practices in our local communities, and share learnings from  our exchanges with the UK..

The members of the Japan Dementia Working Group (JDWG) are people diagnosed with dementia and engaged in advocacy work to help create a community/society where all of us can live well with dementia. This workshop has been planned by people with dementia, with the cooperation of supporters and friends, and will be facilitated together. 


Workshop WO04

Alzheimer’s Disease International (ADI)

Involving people with dementia in research

Time

Location 

16:00–17:30

Room D (first floor)

Speaker

Marc Wortmann, Piers Kotting, Henry Brodaty

Description

ADI has said in its Strategic Plan 2016-2019 that it wants to encourage participation in clinical trials by collecting and disseminating information about these studies and collaborate with other partners to facilitate and increase recruitment for research trials. This is looking at research into drug development, but also care practice, prevention and risk reduction and public health studies such as studies into the prevalence and incidence of dementia.

The workshop will highlight some initiatives that have been taken in various countries, including a report on registries from the University of New South Wales (Australia), JoinDementiaResearch in the UK as well as an ADI initiative that will start in June 2017.


Programme subject to change.

To be confirmed