Plenary 5 – Dementia Friendly Communities

Saturday 29thApril 2017 from 9:00–10:30

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Eny Arafin (Singapore)

Winarjati Binte Arifin was born in Singapore in 1957.

She enjoyed a great childhood growing up in a large family of 9 siblings. She was a great athlete and enjoyed various track & field events.

At the age of 21, after completing her tertiary education, she joined Saudia as a flight attendant and was based in Jeddah. She met her ex– husband there and raised a family with two children.

In 2000, Eny returned to Singapore with her children where she continued to take care of her household. She spent her free–time meeting her friends and sewing, which often led to booking a booth at flea markets and selling her home–made pouches, bags and pillowcases.

In August 2012 after a series of noticeable events, Eny got herself checked and was diagnosed with Alzheimer’s disease. Being a pious Muslim, Eny believes that it is in God’s will and looks at everything from a positive angle. She currently keeps herself very occupied, having daily activities including Zumba, group activity sessions and religious classes.

Eny believes that the best way to face this disease is by embracing it and just being happy.

Kiki

Kiki Edwards (Nigeria)

Kiki is ADI Ambassador for the WHO African Region, one of the 24 Full Members of the World Dementia Council and founder of Rossetti Care Limited, Oyo State, Nigeria. She set the vision and established DementiaNigeria.com, Dementia Care Society of Nigeria (DCSoN), and Dementia Friends Nigeria (an Alzheimer’s Society initiative) in order to educate and support families of Nigerians living with dementia and the communities in which they live. Kiki planned and built a care centre and a 36–bed residential care facility in Nigeria to assist individuals seeking care and respite; provided elderly individuals with a place to socialise, interact, and receive a wide range of support. Kiki launched Purple Angel Dementia Awareness Nigeria in 2014 and Dementia Friends Nigeria in 2016. She developed a network of Purple Angels and Dementia Champions to raise dementia awareness across Nigeria.

Takeya

Takeya Hashimoto (Japan)

Takeya Hashimoto is Director of the Nursing Home , a qualified social worker and case manager and a Buddhist monk. He has held the position of Executive Officer of Anshin System United, Vice Chair of Kyoto City Elderly Welfare Facilities Council, Secretariat of the Society of Kyoto Inclusive and Holistic Dementia Care, a board member of Kyoto Comprehensive Regional Care Promotion Organization and Lecturer of Social Welfare Department, Otani University. Through long term experience dementia care in the field of elderly care from 2000, he has been working for the improvement of the environment of the elderly care facility. and trying to bring relief of BPSD, practicing Unit care with comfortable environment and familiar relationship. 

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Maria Howard (Canada)

Maria Howard is the CEO of the Alzheimer Society of B.C. Since joining the Society in 2014, the five year strategic plan she has set for the Society is well underway. The strategy includes ambitious goals to expand the First Link® program across the province, implement Dementia Friendly Communities and augment funds for research.

Maria is a dynamic and strategic thinker with both provincial and national board governance experience. Her decades of leadership in the health-care sector and her commitment to operational excellence fit with the Society’s ambitious strategy. She holds a Master’s degree in Psychiatric Rehabilitation from Washington University and an MBA from Athabasca University.

Maria lives in Vancouver with her husband and two children and enjoys biking, swimming and spending time with her many pets.

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Faraneh Kaboli (Iran)

Faraneh Farin is an English/Persian translator by profession. She has worked with charity organizations in Tehran and joined Iran Alzheimer’s Association in 2001, when it had just been established. She has worked in the capacity of Overseas PR Coordinator from 2005.

She has translated many resources for training and education bringing the global dementia experience to the cause in Iran.  She has initiated many projects in IAA as well as National Dementia Action plan.  At present, she is a board member.

Mineko

Mineko Matsunaga (Japan )

Mineko Matsunaga is deputy director of the health care facility for the elderly ”Koushi no Sato”. She has been director of a group home for people with dementia ”Mayu no Sato” and of a multi-functional small size facility “Higocchi”.  She is a registered nurse, qualified case manager and dementia care specialist, advanced dementia care mapping user, validation worker, dementia care trainer in the Kumamoto prefecture and bone marrow transplant coordinator. She is also responsible for the design and practice of training sessions for care workers as the chair of the Association of Elimination of Body Restraint Kumamoto. She has been awarded the Merit Prize by the Minister of Health, Labor and Welfare in 2009 and 2010.

Chacha

Noemi Medina (Argentina)

Noemi Medina is the Vice President of A.L.M.A, the Association for the fight against Alzheimer’s disease and related disorders República Argentina, President of Alzheimer Iberoamérica (AIB), and member of the Nominations Committee of ADI. She has a degree in Education Sciences and a degree in Permanent Education. Noemi has held the position of Professor in Techniques of Psychopedagogical Research in the Psychopedagogy Career, University of Salvador, and in Organization, Planning and Educational Policy in the F.de Odontología, University of Buenos Aires. She also has experience as Technical Officer in the National Institute of Public Administration, Argentina, in the General Directorate of Training.

She has worked in Equatorial Guinea as Consultant, Expert and Chief Technical Adviser for EQG / DTCD / UNDP projects, and on the Modernization of Public Administration and Management, Ministry of Función Pública, National School of Public Administration (ENAP). She has worked in Mozambique as a Consultant for Project DTCD / UNDP / Ministry of Foreign Affairs.

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Meera Pattabiraman (India)

Mrs. Meera Pattabiraman, a post graduate in business administration, entered the field of social work after she lost her father to Alzheimer’s disease. She has been associated with Alzheimer's and Related Disorders Society of India (ARDSI) for twenty years. As the founder secretary of the Trivandrum Chapter, she has work experience at all levels, as counsellor for carers and family members, in planning and setting up day care and residential care facilities for persons with dementia and has worked with governmental agencies for conducting short and long term training programmes. She moved to the national scene and served as Secretary General of the national office of ARDSI for 9 years and has been the chairperson of ARDSI since being elected in 2012. She was one of the authors of the Dementia India Report 2010. The pioneering Kerala State Initiative on Dementia (KSID) was conceived in collaboration with two different state institutions namely, Social Justice Department of Kerala and Kerala Social Security Mission and rolled out in the year 2014 under her Chairmanship.  This is the first state private partnership for dementia care, diagnosis, training and awareness in India. She is part of the national think tank to develop better health care for elderly and has taken part in the national health policy meetings. She is the ADI Ambassador for Asia Pacific Region, member of The World Dementia Council and the Global Alliance for Women’s Health.

 

Roberts

Chris Roberts (UK)

Chris Roberts is 55 years old from Wales, UK.

He is living with Mixed Dementia (Alzheimer’s type and Vascular) and Emphysema (COPD). but has not let this diagnosis get in the way of leading a full life. He spends most of his time promoting and providing education and information to others about dementia. He regularly gives talks on what it is like living with dementia and contributes to various social media platforms. He advocates for Rights, inclusion, co–production and better services for all those living with dementia. He is also Vice Chair on the European Working Group of People with Dementia, an Ambassador for the Alzheimer’s Society, a Dementia Friends Champion, Dementia Research Champion, an Affiliate member of Dementia Action Alliance UK, an Honorary Lecturer for Bangor University Wales, a member of DEEP Dementia Policy and Think Tank Group. He was the subject of a documentary made by the BBC, titled ‘Living with Dementia, Chris’ Story’.

Gina

Regina Shaw (UK)

Gina was born in Liverpool, England on the 26th April 1952.  The first child, she was soon to have five brothers and sisters. Gina had some part-time jobs but as she grew older she knew that ultimately she wanted to be a nurse.

She left high school at sixteen and applied to a college where she did well and was encouraged to apply to a hospital. Her first job as a cadet nurse in a children's hospital was a dream come true. Gina travelled the path of promotion, eventually to the role of Night Sister and was then asked to join the team responsible for designing a new hospital. It was during this time that it became apparent that all was not well and Gina knew she could not continue in her role. A visit to the doctors confirmed that she had Alzheimer's disease. She picked herself up and joined a group where she was made co-chair and then chosen to front a campaign for the Alzheimer's Society as the face of the UK Dementia Friends programme. This was very successful and conveyed positive, upbeat message about Alzheimer's. This led to her being invited to take the message to Australia. This was quite a challenge as it involved persuading their government that Dementia Friends worked and was a worthwhile investment. She is proud of her achievements in Australia.

Gina is an active campaigner and speaker as an Alzheimer’s Society Ambassador.

Plenary 6 – Early Onset Dementia

Saturday 29thApril 2017 from 14:00–15:30

Heii Arai

 

Prof. Heii Arai (Japan)

Title of the presentation: Early Onset Dementia: The Japanese Approach

Professor Heii Arai was born in 1953. In 1978 he graduated from Juntendo University School of Medicine and passed the medical examination of the National Board and was licensed to practice medicine as a M.D. In 1984 he graduated from Juntendo Graduate School of Medicine and received a Ph.D. Since 1989 he is working at the Juntendo University.

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Reiko Ashino

Mrs Ashino was born in 1948 and is now 68 years old.

She was diagnosed as Alzheimer’s disease when she was 63 years old in 2012.

She is now smiling and encouraging people with dementia at dementia cafe as a member of AAJ Toyama branch.

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Dr. Adrienne Withall (Australia)

Title of the presentation: Young onset dementia: diverse disorders, diverse care

Dr Adrienne Withall is a Senior Research Fellow within the School of Public Health and Community Medicine at UNSW Australia. She is a Chief Investigator of the INSPIRED Study of young onset dementia and Principal Investigator on current studies examining risk factors for young onset dementia, health outcomes of older cannabis users, and the ageing prisoner. Adrienne is a Board Member of the International Psychogeriatrics Association’s Young Onset Dementia Shared Interest Group. She is passionate about improving care for young people with dementia and their supporters and reducing the risk of cognitive impairment in vulnerable groups.

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Dr. Randall Bateman (USA)

Title of the presentation: Global Overview of Early Onset Research

Dr. Randall Bateman, The Charles F. and Joanne Knight Distinguished Professor of Neurology at Washington University of School of Medicine, received BS degrees in Biology and Electrical Engineering from Washington University and his MD from Case Western Reserve University School of Medicine. Dr. Bateman is the Director of the Dominantly Inherited Alzheimer Network Trials Unit (DIAN-TU). He serves as DIAN’s Principal Investigator and Washington University Performance Site Principal Investigator. Dr. Bateman’s laboratory investigates causes and future diagnostic tests and treatments of Alzheimer’s disease utilizing many assays and techniques from quantitative measurement of stable- isotope labelled proteins to clinical translational studies. 

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